Paving the way to treat SMA.

Paving the way to treat SMA.

Who we are.

About Us

Established in 2014, Working On Walking was founded by a woman with spinal muscular atrophy who dreamed of raising $100 for her disease someday. But the true beginnings of this story go all the way back to 1998. Allow us to explain.

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What we do.

We make it a priority to continuously provide the SMA community with funds, awareness, and hope which all play an integral role on our journey to our ultimate goal— a future where SMA doesn’t have the upper hand. Based in southern New England check out the events we have going on below.

Your Donation Matters

How to help.

We believe in keeping our donors informed about the direct impact their generosity has on the SMA community. Your donation matters, and we want you to know why.

Here’s what matters.

Our Mission

01

Raise Funds

With promising treatments on the horizon, fundraising is more important than ever.

02

Generate Awareness

Spinal Muscular Atrophy (SMA) is a genetic condition where muscles get weaker over time due to a problem with nerve cells in the spinal cord. It can affect how someone moves, breathes, and eats. There are different types of SMA, but early detection and treatment can help manage symptoms.

03

Provide hope

Together, we can rewrite the future of this disease. Hope will light the way.

Join our golf tournament fundraiser!

Be remarkable.

Shop for a cause

Dare to be Remarkable is more than just our tagline. It encourages anyone who believes in the power of rising above. Because the moment you choose to live despite your struggles is the SAME moment you choose to dare remarkably. Let’s wear it proudly.

Join our community

Let’s do this.

Keep tabs on the latest happenings in the SMA community and our organization!